Cure MAPT FTD is a patient-led nonprofit dedicated to ending MAPT-linked frontotemporal dementia. Founded by families directly affected by this rare and devastating form of neurodegenerative disease, Cure MAPT FTD bridges the gap between lived experience and scientific discovery by providing support resources for affected families, advocating for increased research participation, and fostering collaborations that drive breakthroughs toward effective diagnostics and treatments. Through community-driven storytelling, education, and strategic research engagement, Cure MAPT FTD elevates the visibility of MAPT FTD within the broader dementia ecosystem and mobilizes stakeholders toward catalytic impact for patients and caregivers worldwide.